National ABLE Act Call-In Day is Today!
Steps to Take Action -- Easy as 1 – 2- 3
1) Find out if your two Senators and your Representative have signed onto the ABLE Act by clicking on the links below (under cosponsors):
House: http://www.govtrack.us/congress/bills/112/hr3423
Senate: http://www.govtrack.us/congress/bills/112/s1872
If any of your Members have NOT signed onto the ABLE Act, please call their Washington, DC offices (click here to find out the phone number).
Begin the call by introducing yourself and asking to speak with your Member’s disability legislative staffer. (Note: You may need to leave a voice mail or call back, if the disability staffer does not answer)
2) Follow this ABLE Act phone script:
Once you have the staffer on the line, open and introduce yourself with:
• “Hello, I am calling to ask my [Senator/Representative] to be a cosponsor of the Achieving a Better Life Experience (ABLE) Act.”
• I am a constituent from your [State/District] and am a self-advocate, parent, sibling, grandparent, etc. from the [insert disability] community.
Talking Points to Mention During Your Call:
• The ABLE Act (S. 1872/HR 3423) currently has over 134 cosponsors in the House and 14 in the Senate. This bipartisan bill was introduced by:
o Senators Casey (D-PA) and Richard Burr (R-NC) as S. 1872
o Representatives Crenshaw (R-FL), McMorris Rodgers (R-WA), and Van Hollen (D-MD) as H.R. 3423
• The bill has been endorsed by over 50 national, state, and local disability organizations.
• This bill would utilize the 529 education saving accounts program with which thousands of Americans are already familiar. As with the existing 529 accounts, contributions to ABLE accounts would grow tax free and would be easy and inexpensive to create.
• The ABLE Act will give individuals with disabilities and their families the ability to plan and save for their child's future just like every other American family, and help people with disabilities live full, productive lives in their communities without losing benefits provided through private insurances, the Medicaid program, the supplemental security income program, the beneficiary’s employment, and other sources.
• The account could fund a variety of essential expenses for individuals, including medical and dental care, education, community based supports, employment training, assistive technology, housing, and transportation.
• The ABLE Act provides individuals with disabilities the same types of flexible savings tools that all other Americans have through college savings accounts, health savings accounts, and individual retirement accounts.
If your Member is interested in signing on as a cosponsor, please have them contact:
• Senate: Sen. Casey/Jennifer McCloskey (Jennifer_Mccloskey@casey.senate.gov)
• House: Rep. Crenshaw/Jennifer Debes (Jennifer.Debes@mail.house.gov)
3) Let Us Know About Your Call: Please let us know about your conversation Email (insert organization contact) to let us know who you spoke with and what they had to say about the bill. We can help by following up with their DC office.
For more information about the ABLE Act, please use the following resources:
ABLE Act one-pager
•
The ABLE Act - The 112th Congress
•
ABLE Act Gains Support from 49 National, State, and Local Advocacy Organizations
Wednesday, April 25, 2012
Wednesday, March 21, 2012
World Down Syndrome Awareness Day!
March 21st is World Down Syndrome Awareness Day!
A huge thank you to everyone that came out to celebrate Disability Awareness Month and World Down Syndrome Awareness Day with us during Midwest Fashion week last week! I would especially like to thank our models from Down Syndrome Indiana that participated in the March 17th, “Design for Change” Gala this weekend. They are:
• Mickey Deputy,
• Chloe Hipkiss,
• Christine Ruddy
• Andrea Scott,
• Katie Shaw,
• Tommy Sliva!!
What does being a part of an inclusive event mean to individuals with Down syndrome? Well, I asked Self Advocate Jessica Green and here is what she had to say:
"LAST YEAR I WAS A MODEL FOR THE SHOW AND IT WAS AN AMAZING EXPERIENCE. I ENJOY AND LOVE THE CHALLENGE OF TRYING NEW THINGS AND ALWAYS APPRECIATE IT WHEN SOMEONE GIVES ME THE OPPORTUNITY TO SHOW WHAT I CAN DO.
SINCE I WAS A BABY AND A VERY LITTLE GIRL MY PARENTS HAVE ALWAYS ENCOURAGED ME TO TRY NEW THINGS, TO NEVER GIVE UP AND JUST DO THE VERY BEST THAT I CAN DO. YOU NEVER KNOW WHAT YOU CAN ACCOMPLISH UNTIL YOU TRY.
I GRADUATED FROM NORTH CENTRAL HIGH SCHOOL AND THEN WENT ON TO ATTEND MARION UNIVERSITY HERE IN INDIANAPOLIS. I HAVE A JOB AND VOLUNTEER FOR DSI AND THE HAMILTON COUNTY HUMANE SOCIETY. I LIVE IN MY OWN APARTMENT, I PAY TAXES, AND VOTE LIKE EVERY OTHER CITIZEN.
I AM PROUD OF MY ACCOMPLISHMENTS BUT I AM ALSO VERY GRATEFUL FOR ALL OF THE PEOPLE THROUGHOUT MY LIFE WHO HAVE HELPED AND SUPPORTED ME ALONG THE WAY.”
Well Said Jessica!
Save-the-Date! Beginning next year, the event will take place on World Down Syndrome Awareness Day, March 21st! Next year’s committee is forming. If you are interested in serving on the 2013 planning committee, please let Lisa Wells know at lisa@dsindiana.org!
A huge thank you to everyone that came out to celebrate Disability Awareness Month and World Down Syndrome Awareness Day with us during Midwest Fashion week last week! I would especially like to thank our models from Down Syndrome Indiana that participated in the March 17th, “Design for Change” Gala this weekend. They are:
• Mickey Deputy,
• Chloe Hipkiss,
• Christine Ruddy
• Andrea Scott,
• Katie Shaw,
• Tommy Sliva!!
What does being a part of an inclusive event mean to individuals with Down syndrome? Well, I asked Self Advocate Jessica Green and here is what she had to say:
"LAST YEAR I WAS A MODEL FOR THE SHOW AND IT WAS AN AMAZING EXPERIENCE. I ENJOY AND LOVE THE CHALLENGE OF TRYING NEW THINGS AND ALWAYS APPRECIATE IT WHEN SOMEONE GIVES ME THE OPPORTUNITY TO SHOW WHAT I CAN DO.
SINCE I WAS A BABY AND A VERY LITTLE GIRL MY PARENTS HAVE ALWAYS ENCOURAGED ME TO TRY NEW THINGS, TO NEVER GIVE UP AND JUST DO THE VERY BEST THAT I CAN DO. YOU NEVER KNOW WHAT YOU CAN ACCOMPLISH UNTIL YOU TRY.
I GRADUATED FROM NORTH CENTRAL HIGH SCHOOL AND THEN WENT ON TO ATTEND MARION UNIVERSITY HERE IN INDIANAPOLIS. I HAVE A JOB AND VOLUNTEER FOR DSI AND THE HAMILTON COUNTY HUMANE SOCIETY. I LIVE IN MY OWN APARTMENT, I PAY TAXES, AND VOTE LIKE EVERY OTHER CITIZEN.
I AM PROUD OF MY ACCOMPLISHMENTS BUT I AM ALSO VERY GRATEFUL FOR ALL OF THE PEOPLE THROUGHOUT MY LIFE WHO HAVE HELPED AND SUPPORTED ME ALONG THE WAY.”
Well Said Jessica!
Save-the-Date! Beginning next year, the event will take place on World Down Syndrome Awareness Day, March 21st! Next year’s committee is forming. If you are interested in serving on the 2013 planning committee, please let Lisa Wells know at lisa@dsindiana.org!
Monday, March 5, 2012
Tracking Devices?
Do you Know of any Tracking Devices?
Project Lifesaver
With over 20 Police and fire departments in the Indianapolis area participating, citizens enrolled in Project Lifesaver wear a small personal transmitter around the wrist or ankle that emits an individualized tracking signal. If an enrolled client goes missing, the caregiver notifies their local Project Lifesaver agency, and a trained emergency team responds to the wanderer’s area. Most who wander are found within a few miles from home, and search times have been reduced from hours and days to minutes. Recovery times for PLI clients average 30 minutes — 95% less time than standard operations.
Contact Indianapolis Project Lifesaver at 317-714- 5637 for more information.
Amber Alert GPS
Amber Alert GPS, has developed a child safety device that allows you to always know where your child is. The Amber Alert GPS V3 comes with an SOS button and a parent friendly tracking portal where you can set zones around your home, school or any you like and receive alerts when they enter or exit a zone. You can also check the history of the device to see where it’s been. For more information, visit this link: http://www.amberalertgps.com/.
The Riley Safety Store
The Riley Safety Store, launched in 2005, was the first children’s hospital-based Safety Store in the nation to serve families of all children, including children with disabilities or special health care needs, and offers families, staff and the general public access to injury prevention education and a broad inventory of low-cost or free child safety products. Research, field testing, surveys, data review and suggestions from families and Riley Hospital for Children staff help guide the selection of safety products and offering of education, information and safety products needed to prepare for safe escape from fires, disasters or other emergencies.
The Riley Safety Store operates Monday through Friday, 9 a.m. – 4 p.m. For more information please visit RileyHospital.org, call 317-944-6565 or 1-888-365-2022 (toll free) or e-mail kids1st@iupui.edu.
loc8u
What makes the Lok8u GPS Child Locator different from other GPS locator devices?
The Lok8u GPS Child Locator and your child are always one; other devices are placed in book bags or on children's clothing, but what makes this unique from other GPS locators, is that the child cannot remove the device; and, in the event an unauthorized person removes the Lok8u GPS Child Locator; an alert will be sent to your cell phone and email.
Features:
• Works as a Fully-Functional 12-Hour or 24-Hour Kid's Digital Watch
• Your Kids Will Love the Funky and Cool Lok8u GPS Child Locator Watch Design
• Superior Craftsmanship; Steel-Reinforced Patent Locking Mechanism
• Designed with personalization in mind with several available colors, comfortable fit and durability
• For Children Aged 3-12; Derma-label Hypoallergenic Plastic/Steel Composition
• Get Integrated GPS/GSM Updates via web portal or cell phone; Just text "WRU" or click "Where Are U" from your web portal account for location, date/time information
• Enjoy a solid sense of reassurance; receive an alert in the event an unauthorized person attempts to remove your child's Lok8u GPS Child Locator Watch
• Designed to be more reliable and responsive with improved and expanded network coverage for optimized GPS/GSM Performance
• Powerful and innovative technology has improved AT&T network coverage and has extended coverage to include T-Mobile and Network Partners for even more pinpoint location data retrieval
• IP Rating 6X; withstands rainwater, but submersion is not recommended
• The Lok8u GPS Child Locator supports Google street map views of your child's physical location
*Both Domestic and International Lok8u GPS Child Locator Units Require a One-Year Service Plan; you can choose to pay a monthly service fee or you can pre-pay the entire year in full. For more information, visit: http://www.brickhousesecurity.com/child-locator.html.
If Your Child Carries a Cell Phone…
Try: http://www.google.com/mobile/latitude/
Also, consider contacting your cell phone provider to see what options are available through your provider. For example, AT&T, Verizon and Sprint all have programs that let users track their children and other loved ones.
Project Lifesaver
With over 20 Police and fire departments in the Indianapolis area participating, citizens enrolled in Project Lifesaver wear a small personal transmitter around the wrist or ankle that emits an individualized tracking signal. If an enrolled client goes missing, the caregiver notifies their local Project Lifesaver agency, and a trained emergency team responds to the wanderer’s area. Most who wander are found within a few miles from home, and search times have been reduced from hours and days to minutes. Recovery times for PLI clients average 30 minutes — 95% less time than standard operations.
Contact Indianapolis Project Lifesaver at 317-714- 5637 for more information.
Amber Alert GPS
Amber Alert GPS, has developed a child safety device that allows you to always know where your child is. The Amber Alert GPS V3 comes with an SOS button and a parent friendly tracking portal where you can set zones around your home, school or any you like and receive alerts when they enter or exit a zone. You can also check the history of the device to see where it’s been. For more information, visit this link: http://www.amberalertgps.com/.
The Riley Safety Store
The Riley Safety Store, launched in 2005, was the first children’s hospital-based Safety Store in the nation to serve families of all children, including children with disabilities or special health care needs, and offers families, staff and the general public access to injury prevention education and a broad inventory of low-cost or free child safety products. Research, field testing, surveys, data review and suggestions from families and Riley Hospital for Children staff help guide the selection of safety products and offering of education, information and safety products needed to prepare for safe escape from fires, disasters or other emergencies.
The Riley Safety Store operates Monday through Friday, 9 a.m. – 4 p.m. For more information please visit RileyHospital.org, call 317-944-6565 or 1-888-365-2022 (toll free) or e-mail kids1st@iupui.edu.
loc8u
What makes the Lok8u GPS Child Locator different from other GPS locator devices?
The Lok8u GPS Child Locator and your child are always one; other devices are placed in book bags or on children's clothing, but what makes this unique from other GPS locators, is that the child cannot remove the device; and, in the event an unauthorized person removes the Lok8u GPS Child Locator; an alert will be sent to your cell phone and email.
Features:
• Works as a Fully-Functional 12-Hour or 24-Hour Kid's Digital Watch
• Your Kids Will Love the Funky and Cool Lok8u GPS Child Locator Watch Design
• Superior Craftsmanship; Steel-Reinforced Patent Locking Mechanism
• Designed with personalization in mind with several available colors, comfortable fit and durability
• For Children Aged 3-12; Derma-label Hypoallergenic Plastic/Steel Composition
• Get Integrated GPS/GSM Updates via web portal or cell phone; Just text "WRU" or click "Where Are U" from your web portal account for location, date/time information
• Enjoy a solid sense of reassurance; receive an alert in the event an unauthorized person attempts to remove your child's Lok8u GPS Child Locator Watch
• Designed to be more reliable and responsive with improved and expanded network coverage for optimized GPS/GSM Performance
• Powerful and innovative technology has improved AT&T network coverage and has extended coverage to include T-Mobile and Network Partners for even more pinpoint location data retrieval
• IP Rating 6X; withstands rainwater, but submersion is not recommended
• The Lok8u GPS Child Locator supports Google street map views of your child's physical location
*Both Domestic and International Lok8u GPS Child Locator Units Require a One-Year Service Plan; you can choose to pay a monthly service fee or you can pre-pay the entire year in full. For more information, visit: http://www.brickhousesecurity.com/child-locator.html.
If Your Child Carries a Cell Phone…
Try: http://www.google.com/mobile/latitude/
Also, consider contacting your cell phone provider to see what options are available through your provider. For example, AT&T, Verizon and Sprint all have programs that let users track their children and other loved ones.
Monday, February 13, 2012
February is about Self Advocacy
This month, I had the treat of visiting DSI Self Advocate, Katie Shaw on the job and speaking with her employer, Dave Collins about the fantastic work she does at his store. Katie has been employed by JC Penny for approximately 1 year and works at the Michigan Road location. Her typical day consists of checking the fitting rooms and back room and putting clothing back out on the floor neatly. As is always a must in retail, Katie is also responsible for greeting customers and serving them in an excellent fashion. When Dave was asked about Katie, he remarked that, “She sets a great example.” And he is often thanked by customers for employing her. He also added that she is one of his most, “punctual employees”. I am not surprised. When Katie was asked about her career at JC Penny’s, she answered, “I LOVE IT HERE!”.
Not only is Katie a valuable employee at JC Penny but she is also a very valuable volunteer in the Down syndrome Indiana office. Katie has donated almost 800 hours of her time to assisting DSI in a multitude of capacities but most of all she is my right hand (wo)man when it comes to volunteer coordination. Katie is active with her church, involved in a book club and will be visiting her legislators at the statehouse on Tuesday, February 14th as part of the Arc of Indiana’s Valentine’s for Legislators event.
Not only is Katie a valuable employee at JC Penny but she is also a very valuable volunteer in the Down syndrome Indiana office. Katie has donated almost 800 hours of her time to assisting DSI in a multitude of capacities but most of all she is my right hand (wo)man when it comes to volunteer coordination. Katie is active with her church, involved in a book club and will be visiting her legislators at the statehouse on Tuesday, February 14th as part of the Arc of Indiana’s Valentine’s for Legislators event.
Thursday, January 19, 2012
Importance of Life Care Planning
Planning for the Future: Life Care Planning is an Important Tool for Families with Special Needs
By: Kelley Stokesbary, CLCP, MSOTR/L
Stokesbary Life Care Planning
E-mail: stokesbarylifecareplanning@yahoo.com
Phone: (859) 396-5612
As the parent of a child with Down Syndrome, you understandably worry not only about meeting your child’s needs currently, but also in the event that something should happen to you rendering you incapable of providing care. Knowing exactly what those needs are currently, as well as in the future, can be difficult for a parent to determine. Are you doing everything you can to promote your child’s independence? What options are available for additional therapy services? Should I be consulting with specialists, and if so, whom? Where will my child go after high school? Will she be able to live on her own? Who will care for him after I am no longer able? Frequently parents simply do not have the time or the resources available to determine and plan for such needs in the face of daily care-giving. Fortunately, there are specially trained individuals known as Life Care Planners who are capable of helping you navigate through these difficult questions.
A Life Care Plan is a “dynamic document that provides an organized concise plan for current and future needs with associated costs” for individuals who have Special Needs (Source: International Academy of Life Care Planners). Basically, a Life Care Plan is a “roadmap” that promotes function, independence, and quality of life for an individual with Special Needs by outlining the medical needs and the financial burden associated with those needs. A complete Life Care Plan covers 18 categories ranging from physician and specialty appointments to therapy services to transportation and housing needs. It is very detailed and provides a clear look at what needs to be done, when it needs to be done, and why it needs to be done to promote the individual’s independence and quality of life. While the full Life Care Plan is the optimal choice, if desired, the Life Care Plan can be abbreviated to cover only those areas particularly concerning the parent – frequently the areas of education/vocation and home care vs. facility care. In a recent MetLife study, over 50% of parents of adult children with disabilities voiced concerns about their child’s living situation and finances after the parent’s death. Despite that, less than 50% of those parents had created a will, estate plan, or Special Needs Trust, and less than 10% had created a Life Care Plan. A Life Care Plan, when combined with a will, estate plan, and Special Needs Trust affords both the parents and the child with Special Needs peace of mind.
Life Care Planning is still a growing profession with only a handful of Certified Life Care Planners in the state of Indiana. In choosing a Life Care Planner, look for a health care professional who has experience with the Special Needs population. Consideration should also be given to the Life Care Planners professional background – are they still practicing in their prior healthcare profession or are they solely completing Life Care Plans? For example, hiring a Life Care Planner who is an Occupational Therapist and is still actively practicing Occupational Therapy ensures that the Planner is current with new theories and technologies. Choosing a Certified Life Care Planners versus a Life Care Planner who is not certified ensures that the Planner has met the national credentials and is held to a Code of Ethics and Standards of Conduct. Lastly, consider the cost – is the Life Care Planner charging an hourly rate or a flat fee? Both methods are commonly utilized, but if an hourly rate is being charged, ask for an estimate and a maximum fee amount. The cost for a Life Care Plan for a Special Needs individual typically is equivalent of having a will created.
Being proactive about developing a Life Care Plan certainly puts some work on your shoulders initially. However, not having one could mean more work, more stress, more problems to resolve, and more decisions to make under pressure – being reactive as situations arise again and again throughout life. So, take a deep breath, relax, and let a Life Care Planner help. For a complete listing of Certified Life Care Planners in Indiana, visit http://www.ichcc.org/clcp/directory.asp?w=1&l=17.
By: Kelley Stokesbary, CLCP, MSOTR/L
Stokesbary Life Care Planning
E-mail: stokesbarylifecareplanning@yahoo.com
Phone: (859) 396-5612
As the parent of a child with Down Syndrome, you understandably worry not only about meeting your child’s needs currently, but also in the event that something should happen to you rendering you incapable of providing care. Knowing exactly what those needs are currently, as well as in the future, can be difficult for a parent to determine. Are you doing everything you can to promote your child’s independence? What options are available for additional therapy services? Should I be consulting with specialists, and if so, whom? Where will my child go after high school? Will she be able to live on her own? Who will care for him after I am no longer able? Frequently parents simply do not have the time or the resources available to determine and plan for such needs in the face of daily care-giving. Fortunately, there are specially trained individuals known as Life Care Planners who are capable of helping you navigate through these difficult questions.
A Life Care Plan is a “dynamic document that provides an organized concise plan for current and future needs with associated costs” for individuals who have Special Needs (Source: International Academy of Life Care Planners). Basically, a Life Care Plan is a “roadmap” that promotes function, independence, and quality of life for an individual with Special Needs by outlining the medical needs and the financial burden associated with those needs. A complete Life Care Plan covers 18 categories ranging from physician and specialty appointments to therapy services to transportation and housing needs. It is very detailed and provides a clear look at what needs to be done, when it needs to be done, and why it needs to be done to promote the individual’s independence and quality of life. While the full Life Care Plan is the optimal choice, if desired, the Life Care Plan can be abbreviated to cover only those areas particularly concerning the parent – frequently the areas of education/vocation and home care vs. facility care. In a recent MetLife study, over 50% of parents of adult children with disabilities voiced concerns about their child’s living situation and finances after the parent’s death. Despite that, less than 50% of those parents had created a will, estate plan, or Special Needs Trust, and less than 10% had created a Life Care Plan. A Life Care Plan, when combined with a will, estate plan, and Special Needs Trust affords both the parents and the child with Special Needs peace of mind.
Life Care Planning is still a growing profession with only a handful of Certified Life Care Planners in the state of Indiana. In choosing a Life Care Planner, look for a health care professional who has experience with the Special Needs population. Consideration should also be given to the Life Care Planners professional background – are they still practicing in their prior healthcare profession or are they solely completing Life Care Plans? For example, hiring a Life Care Planner who is an Occupational Therapist and is still actively practicing Occupational Therapy ensures that the Planner is current with new theories and technologies. Choosing a Certified Life Care Planners versus a Life Care Planner who is not certified ensures that the Planner has met the national credentials and is held to a Code of Ethics and Standards of Conduct. Lastly, consider the cost – is the Life Care Planner charging an hourly rate or a flat fee? Both methods are commonly utilized, but if an hourly rate is being charged, ask for an estimate and a maximum fee amount. The cost for a Life Care Plan for a Special Needs individual typically is equivalent of having a will created.
Being proactive about developing a Life Care Plan certainly puts some work on your shoulders initially. However, not having one could mean more work, more stress, more problems to resolve, and more decisions to make under pressure – being reactive as situations arise again and again throughout life. So, take a deep breath, relax, and let a Life Care Planner help. For a complete listing of Certified Life Care Planners in Indiana, visit http://www.ichcc.org/clcp/directory.asp?w=1&l=17.
Wednesday, January 18, 2012
Life Care Goals
How do I Develop Life Care Goals?
by guest blogger, Jim Cherco
Having a child with special needs presents many large and difficult challenges. Often families that have a child or children with special needs struggle with doubts and stresses about how best to raise and provide for their family now and in the future. If you are the parent of a child with special needs, the specialized care of your child is surely a very significant concern for you and your family. The job of devising a strategy for support that is ongoing and provides the long-term funding that is needed may be daunting enough that planning never gets started, much less, put in place. Have you considered who will care for your child in the event of your untimely death? Do you have a strategy in place for financing the care of your child as you (and your child) age? Perhaps, someone in your family has agreed to take over the care of your child when you are no longer able to do so. This can present its own challenges and stresses.
When I moved here to the Indianapolis area from Illinois back in 1989 I learned about the famous breaded tenderloin that is “as big as your head”. I asked a friend how on earth one goes about eating such a huge sandwich and he replied, “one bite at a time Jimmy”. I think you should approach your strategy for developing a life care goals are for your special needs child in much the same way. Take on one thing at a time and then move forward until your goals are complete, then review them annually and adjust it for the changes that life brings your way. Having a strategy in place can help to provide the quality of life you want for the child you love when you are no longer able to care for him or her. It will also give you the confidence you need, as a parent of a special needs child. The stress level you experience raising your child has been likened to that of a combat soldier, and can shorten your lifespan by up to 9 to 12 years. Having a strategy in place now to care for the future needs of your child can reduce some of your stress.
Fortunately there are programs that the government offers in addition to Special Needs Trusts (SNT) and Life Insurance that can provide options and funding for the ongoing care of a loved one with special needs. A combination of permanent whole life insurance and term insurance along with an SNT, is a great way to help provide financial care for your loved ones after you’re gone. While making sure that the funding is in place for a special needs child is important, permanent life insurance can provide much needed cash in an emergency.
Making it a priority to keep an updated will at all times that coordinates with an SNT is key to making your wishes known. Additionally, a letter denoting your detailed wishes can prove to be an invaluable asset. It can be a great supplement to the will and provide your designated caregiver/trustee detailed information regarding habits and routine, medical concerns, and parental wishes about living arrangements. Only you know your child best, and if you’re not around to care for him or her, the person who takes over may find it very difficult to figure out what your child’s idiosyncrasies are and it could cause your child undue stress. Keep in mind this is not a legal document but a helpful companion to the will and trust.
No matter how your life is affected by special needs, you need to have a plan in place. We realize that you may be too overwhelmed and don’t know where to begin. We can help you get started and see you through the process over the years. In addition, if you don’t have a support network in place, I would recommend contacting Down Syndrome Indiana or Easter Seals Crossroads.
Jim Cherco,
317-569-7621 jcherco@sfg-in.com.com www.specialneedsstrategies.com
As your personal situations change (i.e., marriage, birth of a child or job promotion), so will your life insurance needs. Care should be taken to ensure this product is suitable for your long-term life insurance needs. You should weigh any associated costs before making a purchase. Life insurance has fees and charges associated with it that include costs of insurance that vary with such characteristics of the insured as gender, health and age, and has additional charges for riders that customize a policy to fit your individual needs.
"Registered Representative of and securities offered through One America Securities, Inc., Member FINRA, SIPC, a Registered Investment Advisor, 11711 North Meridian Street #350, Carmel, IN 46032-9422(317) 569-7600 Insurance Representative of American United Life Insurance Company (AUL) and other insurance companies. Semler Financial Group, INC. is not an affiliate of OnaAmerica Securities or AUL and is not a broker dealer.
by guest blogger, Jim Cherco
Having a child with special needs presents many large and difficult challenges. Often families that have a child or children with special needs struggle with doubts and stresses about how best to raise and provide for their family now and in the future. If you are the parent of a child with special needs, the specialized care of your child is surely a very significant concern for you and your family. The job of devising a strategy for support that is ongoing and provides the long-term funding that is needed may be daunting enough that planning never gets started, much less, put in place. Have you considered who will care for your child in the event of your untimely death? Do you have a strategy in place for financing the care of your child as you (and your child) age? Perhaps, someone in your family has agreed to take over the care of your child when you are no longer able to do so. This can present its own challenges and stresses.
When I moved here to the Indianapolis area from Illinois back in 1989 I learned about the famous breaded tenderloin that is “as big as your head”. I asked a friend how on earth one goes about eating such a huge sandwich and he replied, “one bite at a time Jimmy”. I think you should approach your strategy for developing a life care goals are for your special needs child in much the same way. Take on one thing at a time and then move forward until your goals are complete, then review them annually and adjust it for the changes that life brings your way. Having a strategy in place can help to provide the quality of life you want for the child you love when you are no longer able to care for him or her. It will also give you the confidence you need, as a parent of a special needs child. The stress level you experience raising your child has been likened to that of a combat soldier, and can shorten your lifespan by up to 9 to 12 years. Having a strategy in place now to care for the future needs of your child can reduce some of your stress.
Fortunately there are programs that the government offers in addition to Special Needs Trusts (SNT) and Life Insurance that can provide options and funding for the ongoing care of a loved one with special needs. A combination of permanent whole life insurance and term insurance along with an SNT, is a great way to help provide financial care for your loved ones after you’re gone. While making sure that the funding is in place for a special needs child is important, permanent life insurance can provide much needed cash in an emergency.
Making it a priority to keep an updated will at all times that coordinates with an SNT is key to making your wishes known. Additionally, a letter denoting your detailed wishes can prove to be an invaluable asset. It can be a great supplement to the will and provide your designated caregiver/trustee detailed information regarding habits and routine, medical concerns, and parental wishes about living arrangements. Only you know your child best, and if you’re not around to care for him or her, the person who takes over may find it very difficult to figure out what your child’s idiosyncrasies are and it could cause your child undue stress. Keep in mind this is not a legal document but a helpful companion to the will and trust.
No matter how your life is affected by special needs, you need to have a plan in place. We realize that you may be too overwhelmed and don’t know where to begin. We can help you get started and see you through the process over the years. In addition, if you don’t have a support network in place, I would recommend contacting Down Syndrome Indiana or Easter Seals Crossroads.
Jim Cherco,
317-569-7621 jcherco@sfg-in.com.com www.specialneedsstrategies.com
As your personal situations change (i.e., marriage, birth of a child or job promotion), so will your life insurance needs. Care should be taken to ensure this product is suitable for your long-term life insurance needs. You should weigh any associated costs before making a purchase. Life insurance has fees and charges associated with it that include costs of insurance that vary with such characteristics of the insured as gender, health and age, and has additional charges for riders that customize a policy to fit your individual needs.
"Registered Representative of and securities offered through One America Securities, Inc., Member FINRA, SIPC, a Registered Investment Advisor, 11711 North Meridian Street #350, Carmel, IN 46032-9422(317) 569-7600 Insurance Representative of American United Life Insurance Company (AUL) and other insurance companies. Semler Financial Group, INC. is not an affiliate of OnaAmerica Securities or AUL and is not a broker dealer.
Tuesday, January 10, 2012
Tips for families with special needs
Financial Planning Tips for Families with Special Needs by guest blogger Keven Clasen at WestPoint Financial...
Tips for families with special needs
Provided by Kevin Clasen, a Special Care Planner with WestPoint Financial Group, LLC, a MassMutual Agency; courtesy of Massachusetts Mutual Life Insurance Company (MassMutual)
What is the sign of a good decision?®
It’s creating a life care plan for a special needs child.
A gift of cash from grandma, grandpa or anyone else could end up costing special needs families thousands of dollars in lost government funding and services – benefits that are critical in helping families pay the huge expense of caring for and educating their children with special needs.
Assets over a certain dollar amount may affect qualification for government benefits.
Key considerations
Consider the following tips for families and friends of children with special needs.
1. Do not give or accept financial gifts or assistance in the name of a child with special needs.
2. Deposit gifts into a special needs trust that benefits the child.
3. Be aware: there is no difference between gifts of cash, bonds, stock, property, inheritance, annuities, art and automobiles; they all count against the child’s net worth.
4. Plan ahead: any of these gifts can legally be given to the trust of a child with special needs and will not jeopardize government benefits if the trust is properly drafted in compliance with any particular state’s requirements.
5. Carefully monitor the child’s assets. Interest appreciation could increase their account value to exceed the $2,000 limit.
6. Volunteer to help care for a special needs child, so parents or guardians can have some time to themselves. Caring full-time for children with special needs can be very intense, expensive and demanding.
7. If your child has special needs, create a “Letter of Intent” to document exactly how you want he or she to observe the holidays and with whom, if you pass away – what type of gifts should or should not be given to them and what kind of life they want. A “Letter of Intent” template is available at: www.massmutual.com/specialcare/resources.
8. Consult an attorney specializing in special needs planning with regard to the feasibility of establishing a Special Needs Trust and ask a financial professional for help funding the trust.
9. Review your life insurance, making sure the policy does not benefit the child directly; proceeds that are generally tax free may be paid into the child’s trust.
10. Offer to become a trustee, a very special personal gift to help families and children who need sincere, reliable, dedicated people to manage their children’s trusts and future.
Creating a special needs trust is the first step in creating a life care plan for a special needs child. This type of planning is crucial, yet highly complicated and difficult to do without help, because the issues and laws are complex. Services by an attorney specializing in special needs planning are essential. Your financial professional can help assemble an integrated team of professionals experienced in the area of special needs and, ultimately, assist in funding the trust.
© 2011 Massachusetts Mutual Life Insurance Company, Springfield, MA 01111-0001
Insurance products issued by Massachusetts Mutual Life Insurance Company (MassMutual),Springfield, MA 01111-0001 and its subsidiaries C.M. Life Insurance Company and MML Bay State Life Insurance Company, Enfield, CT 06082
The information provided is not written or intended as specific tax or legal advice and may not be relied on for purposes of avoiding any Federal tax penalties. MassMutual, its employees and representatives are not authorized to give tax or legal advice. Individuals are encouraged to seek advice from their own tax or legal counsel. CRN201301-143562
Tips for families with special needs
Provided by Kevin Clasen, a Special Care Planner with WestPoint Financial Group, LLC, a MassMutual Agency; courtesy of Massachusetts Mutual Life Insurance Company (MassMutual)
What is the sign of a good decision?®
It’s creating a life care plan for a special needs child.
A gift of cash from grandma, grandpa or anyone else could end up costing special needs families thousands of dollars in lost government funding and services – benefits that are critical in helping families pay the huge expense of caring for and educating their children with special needs.
Assets over a certain dollar amount may affect qualification for government benefits.
Key considerations
Consider the following tips for families and friends of children with special needs.
1. Do not give or accept financial gifts or assistance in the name of a child with special needs.
2. Deposit gifts into a special needs trust that benefits the child.
3. Be aware: there is no difference between gifts of cash, bonds, stock, property, inheritance, annuities, art and automobiles; they all count against the child’s net worth.
4. Plan ahead: any of these gifts can legally be given to the trust of a child with special needs and will not jeopardize government benefits if the trust is properly drafted in compliance with any particular state’s requirements.
5. Carefully monitor the child’s assets. Interest appreciation could increase their account value to exceed the $2,000 limit.
6. Volunteer to help care for a special needs child, so parents or guardians can have some time to themselves. Caring full-time for children with special needs can be very intense, expensive and demanding.
7. If your child has special needs, create a “Letter of Intent” to document exactly how you want he or she to observe the holidays and with whom, if you pass away – what type of gifts should or should not be given to them and what kind of life they want. A “Letter of Intent” template is available at: www.massmutual.com/specialcare/resources.
8. Consult an attorney specializing in special needs planning with regard to the feasibility of establishing a Special Needs Trust and ask a financial professional for help funding the trust.
9. Review your life insurance, making sure the policy does not benefit the child directly; proceeds that are generally tax free may be paid into the child’s trust.
10. Offer to become a trustee, a very special personal gift to help families and children who need sincere, reliable, dedicated people to manage their children’s trusts and future.
Creating a special needs trust is the first step in creating a life care plan for a special needs child. This type of planning is crucial, yet highly complicated and difficult to do without help, because the issues and laws are complex. Services by an attorney specializing in special needs planning are essential. Your financial professional can help assemble an integrated team of professionals experienced in the area of special needs and, ultimately, assist in funding the trust.
© 2011 Massachusetts Mutual Life Insurance Company, Springfield, MA 01111-0001
Insurance products issued by Massachusetts Mutual Life Insurance Company (MassMutual),Springfield, MA 01111-0001 and its subsidiaries C.M. Life Insurance Company and MML Bay State Life Insurance Company, Enfield, CT 06082
The information provided is not written or intended as specific tax or legal advice and may not be relied on for purposes of avoiding any Federal tax penalties. MassMutual, its employees and representatives are not authorized to give tax or legal advice. Individuals are encouraged to seek advice from their own tax or legal counsel. CRN201301-143562
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