Monday, August 3, 2015

Understanding Prenatal Testing on September 19th

With the advances being made in prenatal testing, more and more women are finding out earlier than ever that their child has Down syndrome. Surveys show that too often parents do not receive the rest of the information about what a life with Down syndrome can be like and about available support resources. For those parents who have received information and support, they describe it as a lifeline. This presentation will provide attendees the information to confidently engage our local medical community to ensure parents receive accurate, up-to-date information and support. Come and be that lifeline to the next generation of parents raising a child with Down syndrome.

Saturday, September 19th

8:30Am to 4:00PM

DSI 2nd Floor Ballroom

708 E Michigan Street Indianapolis, IN 46202


Please RSVP to or call 317-925-7617

About the speaker: Mark W. Leach is an attorney in Louisville, Kentucky and serves as the bioethics specialist for the National Center for Prenatal & Postnatal Down Syndrome Resources at the University of Kentucky. He provides training to local Down syndrome organizations on medical outreach. Mark’s daughter is endowed with Down syndrome and his son is endowed with curly, blonde hair. You can read more in Mark’s blog:

Thursday, July 9, 2015

New Indiana Law about Prenatal Testing

HB1093 took effect on July1st. It states that…


“When a positive result from a test for Down syndrome or any other condition diagnosed prenatally is received, a health care facility or health care provider shall provide to the expectant parent or the parent of the child diagnosed with Down syndrome or any other condition diagnosed prenatally the written information approved and made available by the state department.”


Down Syndrome Indiana was instrumental in getting this law passed and has already submitted materials to the Indiana State Department of Health for approval and dissemination. A huge thank you to Buffy Smith and Lucy and Marvin Selva for testifying about this important legislation. Their voices helped to get it passed. Gratitude also to Nina Fuller from SMILE on Down syndrome, Kim Dodson from the Arc of Indiana and Representative Ron Bacon for their work on this important piece of legislation.


Please Save-the-Date for Saturday, September 19th to learn more about this legislation and how to get involved in medical outreach to make sure that medical providers and parents have accurate and up-to-date information about Down syndrome.

Friday, June 26, 2015

DSI Summer Picnic on July 11th at Brooks School Park in Fishers

Join us as we Savor the Sunshine at a Hawaiian themed picnic!


Down Syndrome Indiana Annual Summer Picnic

Saturday, July 11th from 11am to 2pm

at Brooks School Park

(11780 Brooks School Road, Fishers, IN 46037)


It will be a fun afternoon in the sun featuring exciting games & activities with friends  and delicious gluten-free food!


Please RSVP to or call 317-925-7617 if you and your loved ones plan to attend.

Monday, June 22, 2015


Down Syndrome Indiana is pleased to welcome its newest staff members Cathy Boyer, DSI Event Coordinator and Annie Smiley, DSI Program Coordinator.

Cathy graduated from Indiana University Indianapolis with a focus in Non-Profit Management.  Cathy has over 10 years’ experience in the development field managing a diversified fundraising portfolio. Cathy enjoys spending time with her family and traveling.  Cathy is honored to be a part of the DSI team and for the opportunity to build lasting relationships with individuals with Down syndrome and their families. Cathy will be overseeing the Down Syndrome Indiana Buddy Walk®, the DSI D.A.D.S. Golf Outing, the Fly-in, the Summer Picnic and the Holiday Party. Cathy can be reached at

Annie is a recent graduate of Indiana University-Purdue University Indianapolis, where she earned a degree in journalism with a concentration in public relations and a minor in event management. Annie grew up with an older brother that has Down syndrome, whom is the main reason for her involvement in the Ds community. She was awarded the William M. Plater Civic Engagement Medallion in 2015 for her work with individuals with disabilities through Live, Laugh, Dance and the Ability Experience. She says, “I feel honored to work an organization that hits so close to home for me!”  Annie oversees a variety of Down Syndrome Indiana programs including: Volunteer Coordination, Adult Life, the DSI Dancers and the e-newsletter. Annie can be reached at

Welcome Ladies, Down Syndrome Indiana is thrilled to have you on the team!


Dedicated to enhancing the lives of individuals with Down syndrome,



Lisa Wells, Executive Director



Tuesday, May 19, 2015

Live Laugh Dance Registration Now Open

Registration for the 2015 Live Laugh Dance Camp is now open! Live Laugh Dance is a summer program specifically designed for adolescents and young adults (age 13+) who have Down syndrome. We are thrilled to announce that we have officially partnered with Down Syndrome Indiana, and will be holding dance classes in the ballroom at the SoL Center in downtown Indianapolis. Dance classes will meet on Tuesdays only from 6-8pm June 9th – July 28th.

Please visit our webpage for more information and instructions on how to register:

If you have any questions, please feel free contact Rachel Swinford via email ( or phone (317-431-9215).

Saturday, April 25, 2015

Down syndrome Timeline

Here are some major milestones in the Down syndrome community that have shaped us into who we are today….

2015 –DSI hosts its 18th Annual Buddy walk

2014 – Down Syndrome Indiana hosts National Down Syndrome Congress National Convention

2008-   Board votes to change name to Down Syndrome Indiana, Inc.

2002 – DSI D.A.Ds founded

1999-   Olmstead Decision & deinstitutionalization

1996-   DSI receives official tax status as Indiana Down Syndrome Foundation

1996 – Down Syndrome Indiana hosts its first Buddy Walk®

1995-   NDSS holds the first Buddy Walk®

1994 – The Indiana Down Syndrome Foundation is founded

1990-   Mapping of the human genome begins

1990-   The Americans with Disabilities Act (ADA) was signed into law under President George H. W. Bush

1989 – Life Goes On featuring, Chris Burke, an actor with Down syndrome begins airing

1986 -  Emily Pearl Kingsley publishes, Welcome to Holland

1984 –  Dr. Charles Epstein introduces his research with the Trisomy 21 mouse

1984-   Baby Doe Rulings

1981 – Down syndrome Medical Checklist introduced in our community

1979 – The National Down Syndrome Society is founded

1975-   The Individuals with Disabilities Education Act (IDEA) was signed into law under President Gerald Ford

1973-   The National Down Syndrome Congress is founded

1969-   The first Special Olympics games in Indiana were played

1968 – First Special Olympics games were played

1960 – The first Down syndrome parent group is founded in Chicago

1959 – Dr. Jerome Lejeune discovers that Down syndrome is a third copy of the 21st chromosome

1866 – John Langdon Down fully describes what we now call, Down syndrome